Conference on the International Rare Diseases Day
The CHL invites you to a conference open to everyone to better understand these lesser-known diseases and engage with experts.
Good to know
📅 Thursday, February 27, 2025
🕘 9:00 AM - 12:30 PM
📍 CHL Amphitheater
Free entry, no registration required.
➡️ Program:
- 08:30 AM: Welcome
- 09:00 AM: Welcome Speech - Dr. Guy BERCHEM
- 09:05 AM: Rare diseases: experience of personalized medicine - Dr. Fernand PAULY
- 09:20 AM: A not so sordid story - Dr. Philippe KERSCHEN
- 09:35 AM: Child growth, when to consider a rare disease - Dr. Nicolas BONNET + Ulrike SCHIERLOH
- 10:10 AM: Rare diseases and hypotonia - Dr. BETHLEN Sarah
- 10:30 AM: Eczema? Not always so simple - Dr. Florence BOURLOND
- 10:45 AM: Movement quantification in motor pathologies - Dr. UEBERHAM Katharina
- 11:05 AM: Multidisciplinary management - Laura MIRON + Gwenn CROHIN
- 11:30 AM: Rare forms of obesity - Dr. Chiraz GHADDHAB
- 11:45 AM: Rare causes of exertional dyspnea - Dr. Gil WIRTZ
- 12:00 PM: Rare uro-nephrological disease: management - Dr. Olivier NIEL
- 12:15 PM: Closing remarks - Francesca POLONI
Automatically translated from French.
Where does it take place?
ALAN - Maladies Rares Luxembourg
4 rue Ernest-Barblé
1210 Luxembourg
Luxembourg
Otherwise… check out the agenda
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